Il Dottor Fumihiko Urano ci ha citato e ringraziato in un suo post insieme a tutte le associazioni sulla Sindrome di Wolfram!!

Thank you, Wolfram syndrome Patient Organizations in the world

The rare disease day is approaching. I would like express my deep appreciation and gratitude to multiple patient organizations supporting my research. I will keep on working with them to improve clinical care, raise awareness, and develop novel treatment for Wolfram syndrome.

Snow Foundation (USA)

Ellie White Foundation for Rare Genetic Disorders (USA)

Worldwide Society of Wolfram Syndrome Families (USA)

The Team Alejandro (USA)

Wolfram syndrome UK (UK)

Wolfram syndrome Italia (Italy)

Thank you again.

Take care,

Fumi Urano